As many of you know, I’m involved with the Burkitt’s Lymphoma Society. I found them in December 2011 and this group of supportive individuals were largely responsible for my return to sanity after several difficult years.
We have a public website at http://www.burkittslymphomasociety.com.
We also have a private Facebook page for support. It is closed to the public and applicants are screened. Why the privacy?
We deal with some tough stuff. A safe haven is provided for those who are dealing with terrible situations that the average person isn’t ready to deal with. We aren’t ready, but are thrust into the middle of this as a patient or parent or family member against our wills.
We have many victories, but unfortunately, way too many losses. The victories and losses cross the spectrum of age. One can never know the details of what it is like to lose a loved one. I only know because of the loss of others I loved due to cancer. My own battle has been difficult. Yet I cannot fathom the additional pain of having to suffer watching your child battle this terrible disease.
Alin Perez has been sharing with us in private, and publicly on her Facebook page, the difficult battle her son Joel has been going through. It is heartbreaking to watch every time when chemo fails to stop the advancement of Burkitt’s Lymphoma. Just heart breaking. I find myself in tears every time over people I’ve never met in person. We feel, in some way, connected with the common pain of facing our humanity. I’ve wept over the continual decline in Joel’s health.
Joel’s battle is getting desperate. The cancer so far has not responded to aggressive chemotherapy. Please pray for Joel and his family as they are going through a terrible situation.
Here’s a news article and video from a local news station in Las Vegas explaining more: