I went to my oncologist visit today. The news isn’t good. My tumor is growing despite the two rounds of chemo. I have been on a protocol called DA-EPOCH. it is considered a medium strength yet successful protocol to treat Burkitt’s Lymphoma.
After the initial round of EPOCH, my tumor shrank considerably. After the second round of chemo, my tumor didn’t shrink and I thought it was starting to lengthen a bit. My oncologist began her exam today and when she touched the tumor, she stated “this is not good.” I agreed and was relieved she saw the same thing I thought I saw.
I will start a new regimen called “RICE”. It is a powerful regimen, one of the most powerful there is. I told her to throw the kitchen sink at me. She said (and others on the Burkitt’s Lymphoma Society’s private page confirmed) that the RICE protocol is brutal and will make me quite ill.
I will begin tomorrow, Thursday the 14th. It is a 14 day interval, only 3 cycles in the regimen. It will take 4 or 5 days to infuse, then home to rest.
If you want further details, please watch my video titled “I have (more) bad news” on my youtube account. You can click on the “video” link in the menu above and look for that title. It is so much easier to watch and hear than it is for me to try to type out a transcript of the video. I include much more detail in the video.
Thank you all for your prayers and support during this difficult time.
Want something to brighten your day? Check out Logan (Logie-Bear!). He is one of my youngest supporters. Love that boy!! He wore a Superman shirt just for me with a Lymphoma symbol. So sweet. Meant the world to me. You know, a cute baby is so good for a weary soul.