Round #2 of chemo has gone fairly well. Not too many glitches. I’ve felt fairly strong overall. Taken very few medications for pain.
The one factor I don’t like and is beyond my control is my blood sugar level. They have me on massive doses of steroids. The cortisol (a hormone) in the steroids causes my body to become insulin resistant or causes to much sugar release (or both). I’m on insulin several times a day. Not used to that.
Spoke with a dietitian at length. She assured me there wasn’t anything I was doing wrong or could do different with my diet. Even if I ate one piece of lettuce daily, my sugars would be out of whack. She stated repeatedly it isn’t from food ingestion, but hormone therapy (steroids).
The knot on my neck is a little bit smaller. Yes! I like this. I wish it would go ahead and melt away quickly, but I suppose that just isn’t going to be the case. I am for sure going to receive 6 rounds of chemo at present, possibly eight.
I have watched a few members of the burkitt’s lymphoma society get to a point in their therapy where the tumors quit responding and they have to switch to other regimens of chemo and start over, so I am not out of the woods yet. I have hope, and try to remain honest in my estimate of the situation.
I did get my ARA-C (cytarabine) infused into my cerebrospinal fluid (CSF) yesterday afternoon. That isn’t much fun, but not as bad as lumbar punctures. My central nervous system gets better over all chemo coverage by going through my Ommaya and it
is relatively simple and straight forward. A few headaches persist, but that is part of the package.
I’ll be going home Tuesday, tomorrow. I will come back for the next round 21 days from this last Thursday, so that puts me back in the hospital for another 6 days starting on August 14th, coming home the 19th if no complications.
If all goes by the book, I should be eligible for a stem cell transplant (if they find a donor) by late October.
I value and appreciate your support and prayers. Thank you all so much for all the help and love.