Thanks to my sister Nora for coming to visit this weekend and helping us out. This allowed Janice to rest at home this weekend and not worry about me this weekend. Nora stayed Saturday night in the room. She is an RN who works night shift in a hospital in South Texas. She is an “RN” in every sense of the word: working all areas she floats to work. Wow, I couldn’t do that!
Nora and I had good conversation. She spoiled the staff with chips, queso, and donuts. Yum. We had a fun filled morning of being silly, some of which I caught on video. Might just have to release **some** of the video 🙂
She gave me a ride home at discharge and we grabbed a bit to eat on the way, then went to the pharmacy to get more medications. My leukine injections were already at the house. Previous injections were all premixed in one syringe, easy peasy. This one is two syringes that have to be reconstituted to make one full injection.
Medical UPDATE: 9-7-2014
Finished RICE round #2. Now to wait unit the “nadir” (low point) hits. Usually takes 5-9 days. Anticipate lots of the usual – weakness, fevers, feel terrible terrible terrible. Part of the process I suppose. Not feeling terrible at the moment. Some weakness, trembling, having trouble holding the camera steady when filming video.
I am not sure if the tumor is responding to the chemo or not. It certainly isn’t bigger, which is encouraging. I can’t say it is any smaller though. I’m not sure if that means it is just dying in place and turning to scar tissue or what is happening to be honest. We are going to try to start coordinating the stem cell transplant, but not sure that we can do much until we get remission going. I’ll update you more about transplant status once we know something.
Going to spend time with my family now. Thank you all for the continued support. RICE round #2 is now onboard and doing whatever it is going to do.
Update to come (some superman stuff to address soon!)
Love to you all,
-Robert & Janice and family