Category Archives: burkitts

Cramping, My Style

As I went to check out at the pharmacy, the clean cement floor of the pharmacy was speaking to me for some odd reason. Strange the things that cross the mind of a tired chemo warrior. I couldn’t help but notice the display of Royal Dansk cookies calling my name. Maybe the fetal position, spooned up with a tin of these cookies right in the midst of a modern pharmacy, might fix all problems right now.
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Cashing in my Humanity

Howdy all, I was released by my transplant team to return to work September 8th. I am working full time, which consists of 3 twelve hour night shifts. I was given a medical accommodation to not work more than two … Continue reading

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Mediport Removal

I have posted two new videos to my video channel on YouTube. You can get to them by clicking on the following: Www.kraftsims.com One video is a general update put out on 7-2-2015 and the other is about the Mediport … Continue reading

Posted in burkitts, cancer, cell, chemo, healing, hodgkins, hope, lymphoma, marrow, stem, Surgery, transplant, Uncategorized | Tagged , , | 2 Comments

One Year Ago Today

Here is what happened a year ago today….I posted this hard to watch video announcing it was indeed Burkitts and I wasn’t sure if I was up for an extended battle.  Today, I am much better overall. I’m glad I … Continue reading

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12 hours later

My surgery ended about 7 PM last night. The first 12 hours have been rather painful and a bit rough.  I did get to go home, taking pain meds by mouth. That required a late night visit to our 24 … Continue reading

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Tube Removal

I got my central line removed today, well, one of them. It was the “tri-fusion” that has three honking hoses sticking out of my chest. I’m so glad to have that one gone. The other central line is buried under my skin, a medi-port. Continue reading

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Home again home again

I came home Sunday. It feels so good to be home. I have rested a lot, slept a lot, and eaten a meal or two. I had an appointment today with my transplant doctor and everything is going well. My … Continue reading

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Going home: day +12

Today is Sunday, November 23, 2014. After spending 20 days in the hospital for a stem cell transplant where I received my own stem cells, I am finally going to go home. It has been a battle that has included … Continue reading

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Day +5

The next few days should prove to be interesting. I was told day +6 through day +12 are some of the hardest due to engraftment. Engraftment is where the stem cells take up residence where they belong (bone marrow) and start populating and regrowing (it has been dead now for a few days). Continue reading

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Weak and Transfused

Today is day +2. I found myself able to move to the restroom, then to the couch. That was about it. No more strength. Profoundly weak and short of breath. My hemoglobin was 7.8, neutrophils are gone completely, white blood cell count was something like 0.1, platelets were around 50 or above. Continue reading

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